Long Term Services & Supports

Findings and recommendations contained in the publications in this section come from analyses of applicable laws, regulations, policy guidance, barriers, promising practices, and models. Publications consider programs, service providers, and technology that assist individuals with disabilities to perform daily functions; and a variety of barriers to community living that exist across age groups, including but not limited to waiver waiting lists, state budget limitations, infrastructure shortcomings, and service provider shortages.


  • Home and Community-Based Services: Creating Systems for Success at Home, at Work and in the Community (HTML)


  • Part 1 Summary: NCD Medicaid Managed Care Forums (HTML)
  • NCD Letter RE: Implementation Period for the Final Rule, “Application of the Fair Labor Standards Act to Domestic Service” (HTML)
  • NCD Letter to CMS Soliciting Its Participation at Upcoming NCD Medicaid Managed Care Forums (HTML)


  • NCD Letter to CMS about Amendment to Kancare Medicaid Section 1115 (HTML)
  • A Medicaid Block Grant Program: Implications for People with Disabilities (HTML) (PDF) (DOCX)
  • The Case for Medicaid Self-Direction: A White Paper on Research, Practice, and Policy Opportunities (HTML) (PDF) (DOCX)
  • Medicaid Managed Care for People with Disabilities (HTML) (PDF) (DOC)
  • NCD Statement on the President's FY14 Budget (HTML)
  • Letter to OMB about the Companionship Exemption (HTML)
  • NCD Sends Recommendations to Long Term Care Commission (HTML)


  • Letter to the President about Chained CPI (HTML)
  • Deinstitutionalization Toolkit (HTML)
  • Deinstitutionalization: Unfinished Business (Companion Paper to Policy Toolkit) (HTML) (PDF) (DOCX)
  • Letter to DOL on the Companionship Exemption (HTML) (DOCX)
  • Rocking the Cradle: Ensuring the Rights of Parents with Disabilities and Their Children (HTML) (PDF) (DOCX)
  • Analysis and Recommendations for the Implementation of Managed Care in Medicaid and Medicare Programs for People with Disabilities (HTML) (PDF)


  • United States Marine Corps Exceptional Family Members (HTML) (PDF)
  • Letter to President Obama in Support of the CLASS Program (HTML) (PDF)
  • Rising Expectations: The Developmental Disabilities Act Revisited (HTML) (PDF)


  • The State of Housing in America in the 21st Century: A Disability Perspective (HTML) (PDF)


  • The Current State of Health Care for People with Disabilities (HTML) (PDF)


  • Inclusive Livable Communities for People with Psychiatric Disabilities (HTML) (PDF) (DOC)
  • The Rehabilitation Act: Outcomes for Transition-Age Youth (DOC)


  • Issues in Creating Livable Communities for People with Disabilities: Proceedings of the Panel (HTML) (PDF)


  • Introductory Brief on NCD's Long-Term Services and Supports Report (HTML) (PDF)
  • Creating Livable Communities (HTML) (PDF)
  • The Needs of People with Disabilities with Psychiatric Disabilities During and After Hurricanes Katrina and Rita: Position Paper and Recommendations (HTML) (PDF)


  • Emergency Management and People with Disabilities: Before, During, and After Congressional Briefing (HTML) (PDF)
  • The State of 21st Century Long-Term Services and Supports: Financing and Systems Reform for Americans with Disabilities (HTML) (PDF)


  • Livable Communities for Adults with Disabilities (HTML) (PDF)
  • Summary of the Native American Forum: Disability Matters in Tribal Communities (HTML) (PDF)


  • Olmstead: Reclaiming Institutionalized Lives (Abridged Version) (HTML) (PDF)
  • Olmstead: Reclaiming Institutionalized Lives (Full-Length On-Line Version) (HTML)
  • Understanding Disabilities in American Indian and Alaska Native Communities: Toolkit Guide (HTML) (PDF)
  • People With Disabilities on Tribal Lands: Education, Health Care, Vocational Rehabilitation, and Independent Living (HTML) (PDF)


  • Carrying on the Good Fight: Summary Paper From Think Tank 2000 - Advancing the Civil and Human Rights of People With Disabilities From Diverse Cultures (HTML) (PDF)
  • Closing the Gap: A Ten Point Strategy for the Next Decade of Disability Civil Rights Enforcement (HTML) (PDF)
  • From Privileges to Rights: People Labeled with Psychiatric Disabilities Speak for Themselves (HTML) (PDF)
  • Think Tank 2000: A Brief Summary As Background Information (HTML) (DOC)


  • Brief Amicus Curiae of the National Council on Disability in Support of Respondents Olmstead v. L.C. HTM (HTML) (PDF)


  • Removing Barriers to Work: Action Proposals for the 105th Congress and Beyond (HTML)


  • Disability Perspectives and Recommendations on Proposals to Reform the Medicaid and Medicare Programs (HTML)
  • Voices of Freedom: America Speaks Out on the Americans with Disabilities Act (HTML)
  • The Americans with Disabilities Act: Ensuring Equal Access to the American Dream (HTML)


  • Making Health Care Reform Work for Americans with Disabilities, Summary Information on Five "Town Meetings" on Health Care Reform (HTML)


  • Progress in Advancing the Status of People with Disabilities Around the World: The Work of the United States Delegation to the Thirty-Third Session of the Commission for Social Development of the United Nations (HTML)

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