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Community inDetail, Part 4

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Additional Resources

Additional resources are available on the topic area of “community” in the Deinstitutionalization Toolkit. These are external documents that may be accessed for a more inDEPTH review of the topic area.


Agosta, J., J. Fortune M. Kimmich, K. Melda, and D. Smith. (2009). Using Individual Budget Allocations to Support People with Intellectual and Developmental Disabilities. Human Service Research Institute, Portland, Oregon. Accessed January 25, 2011.

Bascom, J. E. (2009). Vermont Developmental Disability Services Annual Report 2009. Division of Disability and Aging Services, Department of Disabilities, Aging and Independent Living, Agency of Human Services, State of Vermont. Accessed January 23, 2011.

Bradley, V. J., and M. H. Kimmich. (2003). Quality Enhancement in Developmental Disabilities: Challenges and Opportunities in a Changing World. Baltimore, MD: Paul H. Brookes Publishers.

Brown, R., B. L. Carlson, S. Dale, L. Foster, B. Phillips, and J. Shore. (2007). Cash and Counseling: Improving the Lives of Medicaid Beneficiaries Who Need Personal Care or Home and Community-Based Services Final Report. Mathematica Policy Research. Accessed February 7, 2011.

California Health and Human Service Agency, Department of Developmental Services. (2011). Final Report on the Plan for the Closure of Agnews Developmental Center. Accessed August 31, 2011.

Centers for Medicare and Medicaid Services. (2011). Proposed Rule 76. Federal Register 21311.

Conroy, J. W., and M. Adler. (1998). Mortality Among Pennhurst Class Members, 1978 to 1989: A Brief Report. Mental Retardation 36(5): 380–85.

Day, Carol. (2009). Services for Persons with Dual Diagnosis: Intellectual Disability and Mental Illness. Report to Governor Freudenthal, Wyoming Department of Health.

Durkin, M. (1996). Beyond Mortality—Residential Placement and Quality of Life among Children with Mental Retardation.American Journal of Public Health 86(10):1359–61.

Equip for Equality. (2008). Life and Death in State-Operated Developmental Disability Institutions. Accessed January 23, 2011.

Grossman, H.J. and Eyman, R.K. (1999). Historical Perspective on Mortality and Placement. Journal of Mental Retardation. June. 237–8.

Heller. T., A. R. Factor, K. Hsieh, and J. E. Hahn. (1998). Impact of Age and Transitions Out of Nursing Homes for Adults with Developmental Disabilities.. 103(3):236–48.

Hsieh, K., T. Heller, and S. Freels. (2009). Residential Characteristics, Social Factors, and Mortality Among Adults with Intellectual Disabilities: Transitions Out of Nursing Homes. Intellectual and Developmental Disabilities 47(6):447–65.

Human Services Research Institute/ National Association of State Directors of Developmental Disabilities Services, National Core Indicators. (2011). Consumer Outcomes – Phase XII Final Report 2009–2010 Data. Accessed September 17, 2011 (pgs. 22, 40, 133, 144-154).

Kozma, A., J. Mansell, and J. Beadle-Brown. (2009). Outcomes in Different Residential Settings for People with Intellectual Disability: A Systematic Review. American Journal of Intellectual and Developmental Disabilities 114(3):193–222.

Lakin, K. C., S. Larson, and S. Kim. (2011). Behavioral Outcomes of Deinstitutionalization for People with Intellectual and/or Developmental Disabilities: Third Decennial Review of U.S. Studies 1977–2010. Research and Training Center on Community Living, Institute on Community Integration, College of Education and Human Development, University of Minnesota.

Lakin, K. C., S. Larson, P. Salmi, and A. Webster. (2010). Residential Services for Persons with Developmental Disabilities: Status and Trends through 2009. Research and Training Center on Community Living Institute on Community Integration/UCEDD, College of Education and Human Development, University of Minnesota. Accessed 7/21/2011.

Lemay, R. A. (2009). Deinstitutionalization of People with Developmental Disabilities: A Review of the Literature. Canadian Journal of Community Mental Health 28(1):181–94.

Lerman, P., D. H. Apgar, and T. Jordan. (2003). Deinstitutionalization and Mortality: Findings of a Controlled Research Design in New Jersey. Mental Retardation 41(4):225–36.

Mansell, J. (2006). Deinstitutionalization and Community Living: Progress, Problems and Priorities. Journal of Intellectual and Developmental Disability 31, 65–76.

Maryland Developmental Disabilities Administration. (2008). Rosewood Center – Plan for Services to Residents. Maryland Department of Health and Mental Hygiene, Developmental Disabilities Administration transmitted to Governor Martin O’Malley to fulfill the requirements of Chapter 445 (House Bill 970) of the 2007 General Assembly. January 15, 2008. Accessed January 23, 2011.
SitePages/Developments/Rosewood Closure Information.doc

O’Brien, K. F., and E. S. Zaharia. (1998). Is It Life Threatening to Live in the Community? Commentary 36 (5):408-10.

Shannon, A. M. (2009). Howe Developmental Center (“Howe”) – Final Report to Governor Patrick Quinn. June 30, 2009. Accessed January 25, 2011.

Sobsey, D. (1994). Violence and Abuse in the Lives of People with Disabilities: The End of Silent Acceptance? Baltimore, MD: Paul H. Brookes Publishers.

Shavelle, R., D. Strauss, and S. Day. (2005). Deinstitutionalization in California: Mortality of Persons with Developmental Disabilities after Transfer into Community Care, 1997-1999. Journal of Data Science 3: 371–80.

Stancliffe, R. J., K. C. Lakin, S. Taub, G. Chiri, and S. Y. Byun. (2009). Satisfaction and Sense of Well Being among Medicaid ICF/MR and HCBS Recipients in Six States. Intellectual and Developmental Disabilities 47(2):63–83.

Strauss, D., R. K. Eyeman, and H. K. Grossman. (1996). The Prediction of Mortality in Children with Severe Developmental Disabilities: The Effect of Placement. American Journal of Public Health, 86, 1422–29.

Strauss, D., B. Kastner, and R. Shavelle. (1998). Mortality of Adults with Developmental Disability Living in California Institutions and Community Care, 1985–1994. Journal of Mental Retardation 36: 360–71.

Thompson, J. R.,V. J. Bradley, W. H. Buntinx, R. L. Schalock, K. A. Shogren, M. E. Snell, M. L. Wehmeyer, S. Borthwick-Duffy, D. L. Coulter, E. M. Craig, S. C. Gomez, Y. Lachapelle, R. A. Luckasson, A. Reeve, S. Spreat, M. J. Tasse, M. A. Verdugo, and M. H. Yeager. (2009). Conceptualizing Supports and the Support Needs of People with Intellectual Disability. Journal of Intellectual and Developmental Disabilities 47(2):135–46.

Valenti-Hein, D., and L. Schwartz. (1995). The Sexual Abuse Interview for Those with Developmental Disabilities. Santa Barbara, CA: James Stanfield Company.

Walsh, P. N., E. Emerson, C. Lobb, C. Hatton, V. Bradley, R. L. Schalock, and C. Moseley. (2010). Supported Accommodation for People with Intellectual Disabilities and Quality of Life: An Overview. Journal of Policy and Practice in Intellectual Disabilities 7(2):137–42.