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July 12-13, 2023 Council Meeting

Wednesday, July 12, 2023

TIME AND DATE: The Members of the National Council on Disability (NCD) will hold a two-day in-person Council meeting on Wednesday, July 12, 2023, 9 a.m.– 5:15 p.m. Eastern Daylight Time (EDT). and Thursday, July 13, 2023, 10 a.m. – 12:30 p.m., EDT.

PLACE: This meeting will occur at the Willard Intercontinental Hotel, 1401 Pennsylvania Avenue NW, Washington, DC 20004. Attendees can use the accessible entrance to the hotel, located to the left of the main entrance and next to Café du Parc on Pennsylvania Avenue. The meeting takes place in the hotel’s ballroom. The event will also be streamed live via Zoom videoconference for those not able to attend in person. Registration is not required, but appreciated on our Eventbrite page.

 

Front of Willard Hotel indicating main and accessible entrances

Zoom Livestream available for those not able to attend in-person:

Day 1: Jul 12, 2023 09:00 AM Eastern Time
Please click the link below to join the webinar:
https://us06web.zoom.us/j/83304276073?pwd=UGF6TUJBcHJjSE5oVGRUK2c5OSt4UT09
Webinar ID: 833 0427 6073
Passcode: 378669

Day 2: Jul 13, 2023 10:00 AM Eastern Time (US and Canada)
https://us06web.zoom.us/j/81005515386?pwd=SWJNZk5XM1dmZlRTU2UvT0VGSnZwUT09
Webinar ID: 810 0551 5386
Passcode: 845414

Or Telephone: You will be prompted to input the ID and passcode from above.
Dial(for higher quality, dial a number based on your current location):
+1 301 715 8592 US (Washington DC)
+1 312 626 6799 US (Chicago)
+1 646 876 9923 US (New York)
+1 669 900 6833 US (San Jose)
+1 253 215 8782 US (Tacoma)
+1 346 248 7799 US (Houston)

International numbers available: https://us06web.zoom.us/u/kb3g8JqNaT

ADA Anniversary Zoom Livestream Event July 12, 6 p.m.

Register on our Eventbrite page

The livestream will be available at the following link:

https://us06web.zoom.us/j/82056494485?pwd=aXNOcERyRytkL3N5ejFmZnFBdkI2QT09

Webinar ID: 820 5649 4485

Passcode: 596398

MATTERS TO BE CONSIDERED:

Day 1 – Following welcome remarks and introductions, a panel will present on addressing health disparities through disability clinical care competency training; then a brief break; followed by a panel discussion regarding responding to health disparities of people with disabilities; an hour public comment session on experiences with healthcare barriers and bias; a lunch break; a presentation on NCD’s project underway regarding germline editing and fetal medicine; a presentation on NCD’s project underway on the inclusion of people with disabilities in clinical trials; and a presentation on NCD’s 2023 progress report that is underway on income limits and asset limitations; followed by adjournment.

Day 2 – Following welcome remarks and introductions, the Administration, Finance, and Operations team will provide updates to Council Members; followed by a Legislative Affairs and Outreach team update; a Policy team update; the Chairman’s report; Executive Committee Report, including bylaws vote; Council Member report outs on community outreach; reminders on NCD’s travel reimbursement process; and any old or new business, before adjourning.

AGENDA: The times provided below are approximations for when each agenda item is anticipated to be discussed (all times Eastern Daylight Time):

Wednesday, July 12, 2023

9:00 – 9:05 a.m. – Welcome Greetings, Roll Call, Acceptance of Agenda

9:05 – 9:15 – Chairman’s Welcome and Framing Remarks for Meeting

9:15  – 10:45 a.m. Addressing Health Disparities through Disability Clinical Care Competency Training, Q&A from Council Members

Speakers include: 

  • Zainub Dhanani, Executive Director, Medical Students with Disability and Chronic Illness (alternate is Nora Newcomb, Associate Director)
  • Dr. Susan Havercamp, Director, Health Promotion and Healthcare Parity, The Ohio State University
  • Matt Holder, Past President (2014-2016), American Academy of Developmental Medicine & Dentistry
  • Dr. Priya Chandan, Clinical Associate Professor, Division of Physical Medicine and Rehabilitation, University of Louisville School of Medicine
  • Chloe Rothschild, Board Member, the Arc

10:45 – 11:00 a.m. – BREAK

11:00 a.m. – 12:30 p.m. – Responding to Health Disparities of People with Disabilities – A Collaborative Effort

Speakers include: 

  • Dr. Jonathan Perlin, President and CEO, The Joint Commission
  • Dr. George Shepley, President, American Dental Association
  • Dr. Geoffrey  H. Young, Ph.D, Senior Director, Transforming Health Care Workforce, American Association of Medical Colleges
  • Dr. Bruce Scott, President Elect, American Medical Association
  • Dr. John R. Combes, Chief Communications and Public Policy Officer, Accreditation Council for Graduate Medical Education

12:30 – 1:30 p.m.  – Public Comment: Experiences with Healthcare Barriers and Bias

1:30 – 3:00 p.m. LUNCH BREAK

3:00 – 3:45 p.m. Germline editing and fetal medicine project presentation, Q&A with Members

3:45 – 4:30 p.m. – Clinical trials report presentation, Q&A with Members

4:30 – 5:15 p.m. – NCD’s 2023 Progress Report on asset limitations presentation, Q&A with Members 

5:15 p.m. – Adjourn

Thursday, July 13, 2023

10:00 – 10:10 a.m. – Welcome and Call to Order, Roll Call, Approval of May 4 Council meeting minutes

10:10 – 10:20 a.m. – Administration, Finance, and Operations team update

10:20 – 10:30 a.m. – Legislative Affairs and Outreach team update

10:30 a.m. – 11:00 a.m. – Policy team update

11:00 – 11:10 a.m. Chairman’s Report

11:10 – 11:40 a.m. – Executive Committee Report, including bylaws vote

11:40 a.m. – 12:10 p.m. – Council Member report outs on community outreach / input

12:10 – 12:20 p.m. – AFO team reminders on reimbursement process

12:20 – 12:30 p.m. – Old / New Business

12:30 p.m. – Adjourn

PUBLIC COMMENT: Your participation during the public comment period provides an opportunity for us to hear from you – individuals, businesses, providers, educators, parents and advocates. Your comments are important in bringing to the Council’s attention and issues and priorities of the disability community.

For the July 12 Council meeting, NCD will have an extended public comment period of one hour and requests comments from the public regarding experiences with healthcare barriers and bias for people with disabilities. Additional information on specifics of the topic is available on NCD’s public comment page at https://ncd.gov/public-comment.

The Council will prioritize in-person commenters, but as time permits, will also receive public comment by video or audio over Zoom, and always accepts advance public comments via email. Due to the hybrid nature of the event, in-person presentations will be given priority.

To provide public comment during an NCD Council Meeting in any form (in-person or by Zoom), NCD now requires advanced registration by sending send an email to PublicComment@ncd.gov with the subject line “Public Comment” and your name, organization, state, and topic of comment included in the body of your email. Deadline for registration is July 11, 8:00 p.m. EDT. Please indicate if you are providing the comment in-person, over Zoom, or only submitting via email. All individuals desiring to make public comment are strongly encouraged to read NCD’s guidelines for public comment in advance of the meeting at: https://ncd.gov/public-comment.

While public comment can be submitted on any topic over email, comments during the meeting should be specific to experiences with healthcare barriers and bias for people with disabilities.

CONTACT PERSON FOR MORE INFORMATION: Nicholas Sabula, Public Affairs Specialist, NCD, 1331 F Street NW, Suite 850, Washington, DC 20004; 202-272-2004 (V), or nsabula@ncd.gov.

ACCOMMODATIONS:  ASL Interpreters will be provided in-room and included during the live streamed meeting, and CART has been arranged for this meeting and will be embedded into the Zoom platform as well as available via streamtext link. The web link to access CART (in English) is:  https://www.streamtext.net/player?event=NCD

If you require additional accommodations, please notify Stacey Brown by sending an email to sbrown@ncd.gov as soon as possible and no later than 24 hours prior to the meeting.

Due to last-minute confirmations or cancellations, NCD may substitute items without advance public notice.

NCD.gov

An official website of the National Council on Disability